Saturday, January 23, 2010

From Little Things Big Things Grow.....

Saplings was started by one parent who wanted something better for his little girl, Marc De Salvo.
This is his story:

Jess was diagnosed in November 1999 and at that stage there simply was no educational place at all available, a handful of ASD units all full and not remotely suiting her needs anyway.

By the summer of 2000 we had realized that the only way Jess was going to get what she needed was if we provided it for her.
We had researched as best we could and learned about ABA and even back then it looked like the best plan to go forward with a home program.

We did not have a Home Tuition grant as it was very restrictive back then.

I had basically taken about four months off work and went to a group in Clontarf that was doing monthly meetings regarding ABA training, showing videos of the progress of the kids etc and explaining training on ABA to a group of parents.

I was sitting in my office one day wondering what to do and decided to ring the author of one of the mainstay ABA books that we were using; "
Applied Behavior Analysis for Autism" Dr Gina Green. She would be one of the leading lights in the states having won many awards for her ABA work with kids on the spectrum.

I managed to get Dr Green on the phone that afternoon and to my surprise she was happy to chat and told me she was just back from Belfast where she had been doing a conference on ABA with Dr Mickey Keenan. She said she had met a very bright behavior analyst call Dr Ken Kerr.

The Doctor doing most of the training in Clontarf was Dr Kerr and I said that I too knew Ken and she recommended that I work with him as a consultant.
We ran a home program with Dr Kerr for about 16 months and then I proposed to the Dept Of Education and Science that we needed to set up a school for kids like Jess and others.

The proposal was sent to the DOES in April 2001, while at the same time we began to highlight the need for our alternative method in the national media.

We received the go ahead from the DOES in Sept 2001 for a pilot project/s.
We started in the Malone's family home in October 2001 with 12 kids and then moved to the prefabs in Kill, Co. Kildare in April 2002.

It was a very busy time with us learning how to manage a school, recruit, hire and train staff.
We had many parents in similar situations contact us over the first 6 months and many visits from parents and professionals in the autism field.

We were then asked to expand to 24 children in December 2002 and this was followed by the establishment of Saplings Rathfarnham, South County Dublin some time later.

The demand for our services continued and we ran an out each program for about 14months where we funded 18 home programs along similar lines to those in Saplings for children awaiting a place.

Rathfarnham was followed by Saplings in Goresbridge, Co. Kilkenny was established next and most recently, Saplings in Co. Carlow.
We then went through a period of time where we settled after a lot of development and entered into 2 years of talks with the DOES.

We wanted to establish the schools as recognized special schools and while this has taken a long time our proposal for recognition as a Patron Body for the five special schools is in the very final stages.

Once this has happened it will be available for parents around Ireland to apply to open a special school and seek to have the Saplings ethos and have our once small company recognized as the Patron.

We currently educate 84 children using ABA as the guiding ethos and have had very good results with about 40% of the children progressing so well that that they can move out of our service to a mainstream school setting.

For those kids with a greater autism challenge, like Jess, we are now going to be able to provide an education up to 18yrs and ensure that they have the best opportunity to live life to their true potential.
I hope that Saplings can move forward to deliver a second level educational service to meet the needs of our teenage children and also to start providing other services to families who are face the challenge of raising a child with autism.

Saplings has played a role in working with the national autism charity, Irish Autism Action, in raising awareness and advocating for increased services for people with autism.

In the early 1990's 1 in every 2000 children born were later diagnosed with autism.

By 2004 that had jumped to 1 in 166 according to the Dept of Health and Children.

Without the support of the greater community I believe that the challenge of meeting the needs of people with autism will be too great.

We have had wonderful support from sponsors for the last 9 years and will need this to continue.

There is nothing better than sitting down with Jess and talking with her about her day in Saplings. She is 12 years old now and has grown into a beautiful young lady.

When she was diagnosed at 2, the professionals who did her assessment told us that they believed she would never talk. They said she would be so challenged that we would have to have her in full time residential care by the age of 8.

Thankfully due to the work of many in establishing Saplings and helping it grow, her future and the future of many others is much brighter.
Saplings motto:

"Do not follow where the path may lead but go instead to where there is no path and leave a trail"

1 comment:

popsie said...

parents never cease to amaze me. that is an amazing story of what a parent will do to get what they need for their child. my own son is in an asd unit and is doing o.k but i can't help but wonder sometimes if he could do better. last year he barely spoke and with the little help he has had he has really improved, he actually let me play with him last night. Saplings sounds like a really good school good luck x